I urge any parent who is dealing with a child who has just been diagnosed with PANDAS/PANS or is trying to receive a diagnosis of PANDAS/PANS to watch The NIH PANDAS/PANS Grand Rounds Video Below. Dr. Swedo & Dr. Frankovich are two amazing doctors who have led the way in the discovery of PANDAS/PANS. Both doctors really break down diagnosis criteria for both of these conditions and can be a great resource for you to also share with a pediatrician who has not come across a child with PANDAS/PANS. I at first was going to watch the video and give bullet point notes for other parents, but while I watched the video I found so much information was important and really feel every parent needs to listen for themselves and make their own notes based on their child’s presentation.
Click Below to watch the video for yourself
Also, remember that we have many PANDAS/PANS resources on our Blog as well!